So I debated about sharing this but I think I will just to keep family informed and up to date. I only hesitate to share because I love our E and don't want her to be treated any different.
So at her 4 month appointment her doctor noticed her right eye was drifting a different direction then her left. The doctor said to watch it and if it continues at her 6 month appointment then she should see an eye doctor. Well the 6 month time frame came around and the eye was a little better but it still deviated some. So I took her to the eye doctor, thinking "tThey seek probably put a patch on her. The muscles must just be weak. " Well after the normal eye tests and getting her eyes dilated the doctor told us the verdict, and it was not just a muscle thing. Her optic nerve, or the main nerve that allows signals to be transmitted therefore allowing you to see, didn't develop all the way. She will never have full vision in her right eye. We don't know the extent of what she can and cannot see right now, so we are in the dark about how functional it will be. And she will have to wear glasses as protection for the rest of her life, starting when she begins to walk. But the worst part is that she may have other parts of her brain that may not be developed and she could have growth issues and hormone issues because problems with the pituitary gland are common. ( The pituitary gland controls basically the flow of most of the hormones in your body. It's a big deal) So I have to take our baby girl to get an MRI in the 31st, which she has to be sedated for. So this has been a very difficult month. I still wonder is it because I got induced, even if it was only a few days early? Was it something I are or didn't eat? Should I have taken different prenatals? Was it because I gained so much weight? It has to be my fault right? But OH sites say that they don't know the cause for this condition that occurs in every 1:10,000 kids. I am praying that the 31st brings good news. But either way E is happy and loved by us all. Z was told E has a special eye and she has been good not to make fun or anything. I told Z too that she may have to help her sister if people start too make fun of her. I like to think she understands but I just worry so much about them, especially since people are so mean, starting at such a young age. But mama bear will be there for them always.
Family
Jonathan, Shenise, Zoe, and Eva and Duncan
Wednesday, December 23, 2015
A Story About E
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Just to let u know we love u guys and if anything we can do, please let us.
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